2010 Team Sarcoma
More than 16,000 people participated in events around the world last July as a part of International Sarcoma Awareness Week. Because sarcomas are rare cancers that receive little research funding, many of the events were fundraisers for sarcoma research. Our members joined in local events from California to Maryland and also participated in an online Facebook event with thousands of people.
Please join us in supporting Team Sarcoma events everywhere in 2010! Get involved by spreading the word or planning an event in your neighborhood. Patients and survivors everywhere will benefit.
A new website…
Our new website has some great features! You’ll notice that the top menu is our main menu. The first line contains information about us and about sarcoma. The second line contains the main categories of our stories.
Our stories are also labeled with useful tags. Whether you’re looking to read about people who have dealt with a tumor in a specific location or those who were diagnosed in a certain age group, you’ll find them with one click on the right side of the home page.
If the categories and tags on the front page don’t help, make sure to use the search box in the top right corner. If you have questions or comments about the new layout, just leave them here!
If you have shared your story: search for it using the search box and make sure that the details are correct. Contact Mary at info@abc-survivors.net if you’d like to make changes.
We go global…on your back
ABC Survivors shirts are available! The back of each shirt features the unique “signatures” of 80 of our friends who have dealt with sarcoma. The front of each shirt features the Team Sarcoma logo. We are pleased to be a part of this international effort to increase sarcoma awareness and raise funds for sarcoma research.
A variety of shirt styles are available in the Team Sarcoma Store, and each shirt includes a $5 donation to sarcoma research via the Liddy Shriver Sarcoma Initiative’s Research Grants Program. In the past, the Initiative has funded research into Ewing’s sarcoma and osteosarcoma, and a chondrosarcoma grant will be funded soon. ABC Survivors hopes to see the Liddy Shriver Sarcoma Initiative continue to fund the research that will improve treatments for bone cancer patients and survivors.
Amber’s Second Opinion
Amber read the stories on this site and decided to seek a second opinion about her bone tumor. She found a great orthopedic oncologist who performed a definitive biopsy. In the end, Amber spared herself unnecessary major surgery by seeking a second opinion, even though everyone told her she need not bother.
Diagnosis: I dislocated my right knee five years ago. I was told that I had a tumor and the doctor recommended an MRI. Afterwards I was told that there was nothing to worry about so I went on with life and gave the tumor very little thought, until this past April. I dislocated my knee again (I’ve dislocated it 5 times by the way)! I went to a new Orthopedic Surgeon for my knee and he thought the tumor deserved another look, this time by an oncologist. …Read More
One Woman’s Journey to a Correct Diagnosis
Fall 2006 – With the support of her family and determination to discover the truth, Christi avoided unnecessary surgery and obtained a correct diagnosis…but only after paying doctors out of pocket, sending her tumor samples to three different pathologists, and facing the possible loss of her jaw.
Christi’s Story
A Case of Misdiagnosed Chondrosarcoma at the Maxilla
As you may know, the pathway to getting a correct diagnosis with something as rare as chondrosarcoma can be very difficult. I would like to share an overview of my experience in hopes that it may help someone else on their journey. …Read More
ABC Survivors proud to support new sarcoma research projects
December 2006 – The Liddy Shriver Sarcoma Initiative is pleased to announce the funding of two research projects at the Huntsman Cancer Institute at the University of Utah. The two grants, totaling $50,000, are being made in memory of Liddy Shriver, Brian Morden, Krystle Smith, Shane Duffy, Conor O’Sullivan, Paul Onvlee, and Allen Strehlow and to honor those currently fighting this disease. …Read More
